Olivia News

After doing so well since she was born in February, Olivia took a turn for the worst this past weekend. She had been completely off of oxygen for 2 weeks and was doing really well. Then, in the course of 6 hours, she stopped breathing 8 times, had a seizure, and was vented. They have tried to take out the vent 3 times and each time she immediately stops breathing. After exploratory surgery, they found that she has a weak trachea.

Right now, there is nothing they can do. The weak spots in her trachea are too low for a trach tube, even a custom made one. She can't breath on her own. They're afraid that as she gets bigger, the problem will just get worse. Here's the kicker though, the longer she's on the vent, the worse her lungs will get. So even if she does get to the point where she can have surgery on her trachea, her lungs may be in too poor of shape to function properly.

As of now, the doctors are saying she needs to be in the hospital until she has her open heart surgery, in 4.5 months. They want to do the trachea surgery at the same time. Unforunately, if she's on the vent for another 4.5 months, she'll probably need a double lung transplant.

Just pray, I don't really know what else to do. But please, keep them all in your thoughts.